Aspectos psicosociales, trastornos psiquiátricos y calidad de vida en el trasplante renal pediátrico
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Publicado
2012-09-30
Cómo citar
Avella-García, C. B., Herreros, O., Vacas, R., Rubio, B., & Gastamiza, X. (2012). Aspectos psicosociales, trastornos psiquiátricos y calidad de vida en el trasplante renal pediátrico. Revista De Psiquiatría Infanto-Juvenil, 29(3), 9–17. Recuperado a partir de https://aepnya.eu/index.php/revistaaepnya/article/view/220
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Sección
Artículo de revisión
Palabras clave:
Trasplante renal, psiquiatría de la infancia, psiquiatría de la adolescencia, psicopatología, calidad de vidaResumen
Introducción: El transplante renal está ampliamente aceptado como tratamiento de primera línea para el fallo renal terminal en pacientes pediátricos. Los enormes avances médicos en esta área, alejando el riesgo de muerte y facilitando positivamente su vida conllevan además otros planteamientos asistenciales como son los aspectos psicológicos y psiquiátricos de este grupo de niños y adolescentes. El transplante implica cambios en la vida de estos jóvenes, que pueden influenciar su estado psicológico así como sus trastornos psiquiátricos. Objetivo: Examinar la literatura sobre los trastornos psiquiátricos y el bienestar psicológico en los niños y adolescentes con transplante renal. Metodología: Revisión de tema con el estudio de los artículos publicados sobre ello y recogidos en las bases de datos bibliográficas PubMed- Medline, OVID y SCIELO. Resultados: Se encuentran diferencias en la prevalencia de psicopatología y en el bienestar de estos pacientes comparados con grupos de control, observándose mayor sintomatología desadaptativa y problemas del desarrollo, y menor calidad de vida en los transplantados. Conclusiones: La mejor asistencia de este grupo ha de incorporar la valoración y abordaje tanto de las patologías psiquiátricas como de los aspectos de calidad de vida. Son necesarios más estudios de profundización en el conocimiento científico de estos aspectos en la población pediátrica atendida. Son especialmente relevantes los estudios que evalúen lo que sucede en el primer año postransplante y aquellos que planteen un seguimiento longitudinal.
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Citas
1. Dobbels F, Decorte A, Roskams A, et al. Healthrelated quality of life, treatment adherence, symptom experience and depression in adolescent renal transplant patients. Pediatr Transplantation 2010; 14: 216-223.
2. Kaarfelt HME, Lindbald FIE, Crafoord J, et al. Renal Transplantation: Long-Term adaptation and the children’s own reflections. Pediatr Transplantation 2003: 7; 69-75.
3. Berney-Martinet S, Key F, Bell L, et al. Psychological Profile of Adolescents with a kidney transplant. Pediatr Transplantation 2009; 13: 701-710.
4. Zelikovsky N, Dobson T, Norman J. Medication beliefs and perceived barriers in adolescent renal transplant patients and their parents. Pediatr Nephrol 2011; 26: 953-959.
5. Rianthavorn P, Ettenger RB. Medication nonadherence in the adolescent renal transplant recipient: A clinician’s viewpoint. Pediatr Transplantation 2005; 9: 398-407.
6. Manificat S, Dazord A, Cochat P, et al. Quality of life of children and adolescents after kidney or liver transplantation: Child, parents and caregiver’s point of view. Pediatr Transplantation 2003;
7: 228-235. 7. Penkower L, Dew MA, Ellis D, et al. Psychological Distress and Adherence to the Medical Regimen Among Adolescent Renal Transplant Recipients. American Journal of Transplantation 2003; 3: 1418-1425.
8. Tong A, Morton R, Howard K, et al. “When I had my transplant, I became normal.” Adolescent perspectives on life after kidney transplantation. Pediatr Transplantation 2011; 15: 285-293.
9. Maikranz JM, Steele RG, Dreyer ML, et al. Emotional Adjustment and Adherence among pediatric renal and liver transplant recipients. Journal of Pediatric Psychology 2007; 32: 571-581.
10. Qvist E, Nahri V, Apajasalo M, et al. Psychosocial adjustment and quality of life after renal trasplan tation in early childhood. Pediatr Transplantation 2004; 8:120-125.
11. Wallace J, Yorgin PD, Carolan R, et al. The use of art therapy to detect depression and post-traumatic stress disorder in pediatric and Young adult renal transplant recipients. Pediatr Transplantation 2004; 8: 52-59.
12. Aparicio López C, Fernández Escribano A, Izquierdo García E, et al. Medida mediante un test específico de la calidad de vida relacionada con la salud en niños con enfermedad renal crónica. Influencia del tratamiento. Nefrología 2010; 30: 177-184.
13. Diseth TH, Tangeraas T, Reinfjell T, et al. Kidney Transplantation in childhood: mental health and quality of life of children and caregivers. Pediatr Nephrol 2011; 26: 1881-1892.
14. Neuhaus TJ, Wartmann M, Weber M, et al. Psychosocial impact of living-related kidney transplantation on donors and partners. Pediatr Nephrol 2005; 20: 205-209.
15. Buer LCT, Hofmann BM. How does kidney transplantation affect the relationship between donor and recipient? Tidsskr Nor Legeforen 2012; 132: 41-43.
16. Falger J, Latal B, Landolt MA, et al. Outcome after renal transplantation. Part I: Intellectual and motor performance. Pediatr Nephrol 2008; 23: 1339-1345.
17. Icard P, Hooper SR, Gipson DS, et al. Cognitive Improvement in Children with CKD after transplant. Pediatr Transplantation 2010; 14: 887-890.
18. Wu YP, Aylward BS, Steele RG et al. Psychosocial functioning of pediatric renal and liver transplant recipients. Pediatr Transplantation 2008; 12: 582- 587.
19. Soliday E, Koole E, Lande MB. Psychosocial Adjustment in Children with Kidney Disease. J Pediatr Psychol 2000; 25: 93-103.
20. Falger J, Landolt MA, Latal B, et al. Outcome after renal transplantation. Part II: Quality of life and psychosocial adjustment. Pediatr Nephrol 2008; 23: 1347-1354.
21. Ghanizadeh A, Mansoori Y, Ashkani H, et al. Major Depressive Disorder in Children and Adolescents after Renal Transplantation. Transplantation Proceedings 2009; 41: 1627-1629.
22. Libman Mintzer L, Stuber ML, Seacord D, et al. Traumatic Stress Symptoms in Adolescent Organ Transplant Recipients. Pediatrics 2005; 115: 1640- 1644.
23. Young GS, Libman Mintzer L, Seacord D, et al. Symptoms of Posttraumatic Stress Disorder in Parents of Transplant Recipients: Incidence, Severity, and Related Factors. Pediatrics 2003; 111: e725-e731.
24. Delucchi A, Gutierrez H, Arrellano C, et al. Factors that influence Nonadherence in Inmunosupressant Treatment in Pediatric Transplant Recipients: A proposal for an educational strategy. Transplantation Proceedings 2008; 40: 3241-3243.
25. Galbraith CA, Hathaway D. Long-Term Effects of Transpantation on Quality of Life. Transplanatation 2004; 77: S84-S87.
26. Bullington P, Pawola L, Walker R, et al. Identifiation of medication non-adherence factors in adolescent transplant patients: the patient’s viewpoint. Pediatr Transplantation 2007; 11: 914-921.
27. Wu YP, Aylward BS, Steele RG. Associations between internalizing symptoms and trajectories of medical adherence among pediatric renal and liver transplant recipients. Journal of Pediatric Psychology 2010; 35: 1016-1027.
28. Bakewell AB, Higgins RM, Edmunds ME. Does ethnicity influence perceived quality of life of patients on dialysis and following renal transplant? Nephrol Dial Transplant 2001; 16: 1395-1401.
29. Sundaram SS, Landgram JM, Neighbors K, et al. Adolescent Health-Related Quality of Life Following Liver and Kidney Transplantation. American Journal of Transplantation 2007; 7: 982-989.
30. Devine KA, Reed-Knight B, Simons LE, et al. Prospective comparison of parent and adolescent report of health-related quality of life in adolescent solid organ transplant recipients. Pediatr Transplantation 2010; 14: 1000-1006.
31. VanLeeuwen JJ, Matthews DE. Comprehensive mental health care in a pediatric dialysis –transplantation program. CMA Journal 1975; 113: 959- 962.
32. Fukunishi I, Suguwara Y, Takayama T, et al. Maladjustment Behaviors in Pediatric Living-Related Transplantation. Transplantation Proceedings 2002; 34: 2767.
2. Kaarfelt HME, Lindbald FIE, Crafoord J, et al. Renal Transplantation: Long-Term adaptation and the children’s own reflections. Pediatr Transplantation 2003: 7; 69-75.
3. Berney-Martinet S, Key F, Bell L, et al. Psychological Profile of Adolescents with a kidney transplant. Pediatr Transplantation 2009; 13: 701-710.
4. Zelikovsky N, Dobson T, Norman J. Medication beliefs and perceived barriers in adolescent renal transplant patients and their parents. Pediatr Nephrol 2011; 26: 953-959.
5. Rianthavorn P, Ettenger RB. Medication nonadherence in the adolescent renal transplant recipient: A clinician’s viewpoint. Pediatr Transplantation 2005; 9: 398-407.
6. Manificat S, Dazord A, Cochat P, et al. Quality of life of children and adolescents after kidney or liver transplantation: Child, parents and caregiver’s point of view. Pediatr Transplantation 2003;
7: 228-235. 7. Penkower L, Dew MA, Ellis D, et al. Psychological Distress and Adherence to the Medical Regimen Among Adolescent Renal Transplant Recipients. American Journal of Transplantation 2003; 3: 1418-1425.
8. Tong A, Morton R, Howard K, et al. “When I had my transplant, I became normal.” Adolescent perspectives on life after kidney transplantation. Pediatr Transplantation 2011; 15: 285-293.
9. Maikranz JM, Steele RG, Dreyer ML, et al. Emotional Adjustment and Adherence among pediatric renal and liver transplant recipients. Journal of Pediatric Psychology 2007; 32: 571-581.
10. Qvist E, Nahri V, Apajasalo M, et al. Psychosocial adjustment and quality of life after renal trasplan tation in early childhood. Pediatr Transplantation 2004; 8:120-125.
11. Wallace J, Yorgin PD, Carolan R, et al. The use of art therapy to detect depression and post-traumatic stress disorder in pediatric and Young adult renal transplant recipients. Pediatr Transplantation 2004; 8: 52-59.
12. Aparicio López C, Fernández Escribano A, Izquierdo García E, et al. Medida mediante un test específico de la calidad de vida relacionada con la salud en niños con enfermedad renal crónica. Influencia del tratamiento. Nefrología 2010; 30: 177-184.
13. Diseth TH, Tangeraas T, Reinfjell T, et al. Kidney Transplantation in childhood: mental health and quality of life of children and caregivers. Pediatr Nephrol 2011; 26: 1881-1892.
14. Neuhaus TJ, Wartmann M, Weber M, et al. Psychosocial impact of living-related kidney transplantation on donors and partners. Pediatr Nephrol 2005; 20: 205-209.
15. Buer LCT, Hofmann BM. How does kidney transplantation affect the relationship between donor and recipient? Tidsskr Nor Legeforen 2012; 132: 41-43.
16. Falger J, Latal B, Landolt MA, et al. Outcome after renal transplantation. Part I: Intellectual and motor performance. Pediatr Nephrol 2008; 23: 1339-1345.
17. Icard P, Hooper SR, Gipson DS, et al. Cognitive Improvement in Children with CKD after transplant. Pediatr Transplantation 2010; 14: 887-890.
18. Wu YP, Aylward BS, Steele RG et al. Psychosocial functioning of pediatric renal and liver transplant recipients. Pediatr Transplantation 2008; 12: 582- 587.
19. Soliday E, Koole E, Lande MB. Psychosocial Adjustment in Children with Kidney Disease. J Pediatr Psychol 2000; 25: 93-103.
20. Falger J, Landolt MA, Latal B, et al. Outcome after renal transplantation. Part II: Quality of life and psychosocial adjustment. Pediatr Nephrol 2008; 23: 1347-1354.
21. Ghanizadeh A, Mansoori Y, Ashkani H, et al. Major Depressive Disorder in Children and Adolescents after Renal Transplantation. Transplantation Proceedings 2009; 41: 1627-1629.
22. Libman Mintzer L, Stuber ML, Seacord D, et al. Traumatic Stress Symptoms in Adolescent Organ Transplant Recipients. Pediatrics 2005; 115: 1640- 1644.
23. Young GS, Libman Mintzer L, Seacord D, et al. Symptoms of Posttraumatic Stress Disorder in Parents of Transplant Recipients: Incidence, Severity, and Related Factors. Pediatrics 2003; 111: e725-e731.
24. Delucchi A, Gutierrez H, Arrellano C, et al. Factors that influence Nonadherence in Inmunosupressant Treatment in Pediatric Transplant Recipients: A proposal for an educational strategy. Transplantation Proceedings 2008; 40: 3241-3243.
25. Galbraith CA, Hathaway D. Long-Term Effects of Transpantation on Quality of Life. Transplanatation 2004; 77: S84-S87.
26. Bullington P, Pawola L, Walker R, et al. Identifiation of medication non-adherence factors in adolescent transplant patients: the patient’s viewpoint. Pediatr Transplantation 2007; 11: 914-921.
27. Wu YP, Aylward BS, Steele RG. Associations between internalizing symptoms and trajectories of medical adherence among pediatric renal and liver transplant recipients. Journal of Pediatric Psychology 2010; 35: 1016-1027.
28. Bakewell AB, Higgins RM, Edmunds ME. Does ethnicity influence perceived quality of life of patients on dialysis and following renal transplant? Nephrol Dial Transplant 2001; 16: 1395-1401.
29. Sundaram SS, Landgram JM, Neighbors K, et al. Adolescent Health-Related Quality of Life Following Liver and Kidney Transplantation. American Journal of Transplantation 2007; 7: 982-989.
30. Devine KA, Reed-Knight B, Simons LE, et al. Prospective comparison of parent and adolescent report of health-related quality of life in adolescent solid organ transplant recipients. Pediatr Transplantation 2010; 14: 1000-1006.
31. VanLeeuwen JJ, Matthews DE. Comprehensive mental health care in a pediatric dialysis –transplantation program. CMA Journal 1975; 113: 959- 962.
32. Fukunishi I, Suguwara Y, Takayama T, et al. Maladjustment Behaviors in Pediatric Living-Related Transplantation. Transplantation Proceedings 2002; 34: 2767.
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